Friday, 12 October 2012

Half a Million Hits-Thanks

Today, we have reached half a million hits. This would not have happened without you! Thanks.



From the first posts by Prof G in September 2009 with 11 posts a year to 65 posts in 2010. We (Team G) all thought he was mad, like any innovator. He prodded us to engage and we have come round to his way of thinking. We have had nearly 1,000 posts in 2012 so far. 


It was not until the skiing accident in April 2011 that Prof G began daily posts. This was done due to being stuck in the skiing lodge, whilst Mrs G and the kids were on piste. Through May-July Prof G and the people from www.shift.ms had Team G learning to BLOG and speaking to MSers. They created the Mouse and MD & MD2 were let loose on the world of social media at the end of July 2011. This was done whilst Prof G (as I put it "You have dragged the horse to water ...and pushed it in") was on holiday and MD was not told that 2 or more posts a day was not the norm. I note that the rise in hits plateaued at that point,.I know you like Prof Gs posts the most (we can see the number of views). I can live with that...his are more relevant, but Mine are more fun.....No Comments. At the beginning of 2012 we had just over 100,000 hits and are now breaking 50,000 hits a month.
We have a truly global audience from all continents across the globe. We get more visitors from outside the UK than in it. However, there are a lot more MSers out there, so we have space to grow. The BLOG has impact and you have helped us get studies off the ground. 

Thank you for your participation on behalf of Prof and Team G. 
A million hits here we come!

23 comments:

  1. Many congrats. This is, hands down, the best source of MS research news in the world. Intelligent and thought provoking - my life as an MSer would be poorer without it. In some ways, it's as important to me as my DMT and symptom medication - this provides a daily source of hope of therapeutic breakthroughs which is incredibly psychologically valuable. It also balances that with a helpful dIDE of realism. Please never let the cynics (or strident CCSVIers!) make you stop this blog!

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  2. Congratulations and many thanks!
    Please explain 'Prof G alerts social media' and the rise in hits from there

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  3. Thanks for the kind comments. Hopefully we'll go on to be bigger and better as time goes on. Who knows, the blog might be valuable in opinion forming so things can move on ever faster.
    Keep those hits coming and tell your friends/fellow MSers!

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  4. Prof G links some posts to Google +, twitter, facebook.

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  5. I know Prof G asked for volunteers to do this and Maria (from US I think) kindly volunteered to do this, but in the end Prof G felt it best to keep it in house, so he does the social media stuff...stops him telling us about piles;-)

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  6. This DOES call for a glass of champagne (or more likely a pint of beer)!

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  7. While the blog does frustrate me at times with its all-embracing attitude to questionable DMTs and pro-big Pharma stance, it is, nonetheless, a hugely important resource.

    I think MD's drive to tackle prog MS is hugely important. I get a real sense that he's restless to get to the bottom of it. I also like his reporting on how the nature of MS research has changed over the decades, his comprehensive knowledge providing a historical context of how the focus shifted from MS as a standard disease to an immunological entity to finally being about sustained nerve damage.

    In all honesty Mouse Doc, you make this blog what it is. It would be bereft without you. Ataboy!

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  8. This blog has changed my life since my diagnosis. You are the only ones outside my family to know about my MS (short for "My Secret").
    I salute you all for your dedication & knowledge & kindness. Chapeau to Prof G for having had this idea and to MouseDoc for his expertise, dedication and wit! My thanks also to MouseDoc2, Ram, Ruth et.al. who post from time to time.
    I too, am very happy that MouseDoc is one of the members of this Progressive MS committee - I feel in safe hands! Many heartfelt thanks to you all!!!

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  9. "While the blog does frustrate me at times with its all-embracing attitude to questionable DMTs and pro-big Pharma stance, it is, nonetheless, a hugely important resource."

    I think if you read a little deeper you would see that we are anything but pro Big Pharma. We call it as we see it. Also curious about what you mean by questionable DMTs exactly.

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  10. DM2, I do think Prof G comes to the defence of big Pharma, often citing how essential they are even when they do wrong by messing with cost control and playing the NHS when it comes to what drugd it's allowed to dispence.

    You know that DMTs have huge side effects and deliver not great enough results yet the blog's mantra of early-aggressive treatment is yet to covince the vast majority of neurologists. You guys are pro-medicine, but the medicines on offer are not yet good enough to justify the risks.

    There is great attention given to meds but not enough devoted to how physio and well-being are better than any of the dangerous medication on offer.

    DMTs are dangerous. I wish this blog would make a point of that. We don't know the long-term effects it may cause in humnans.

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  11. I do like this blog and repost material to other MS groups that I am in - so your reach goes a lot further than you think.

    Appreciate the up to date information and explanations where appropriate.

    Great job guys! Keep it up.

    And as for the sometimes irreverent Mouse, the antics are charming and he's kinda cute :)

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  12. I disagree with everything Anon 2.11 wrote.
    Despite all the Bad Pharma problems, I'm greatful to pharma for making DMTs.

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  13. Anon 2.11
    "DMTs are dangerous. I wish this blog would make a point of that. We don't know the long-term effects it may cause in humnans."

    The dangers of some of the DMTs have been well-documented here as have our problems with some of the behaviour of Pharma but the bottom line is that it took a long time to get Pharma interested in MS. Now they are, the DMT tap is turned on and the therapeutic arsenal is increasing all the time.

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  14. I think the biggest problem for MSers is that they have been brainwashed into thinking their DMTs are doing something great for them when the truth is that there is no conclusive proof that these drugs are value for money. The cases of deaths on fingolimod and PML caused by other drugs are just not worth it. We need a holistic approach to MS, not a drug-crazed one. Until pharma can manufacture drugs that demonstrate immune control and CNS repair then there is no way to justify the risks and the costs.

    DMTs, in their current state, are like stret heroin. What we need are treatments that promote better living. Just because one wishes for the drug to be working for them doesn't mean that it is. Goodness knows what long term damage such powerful drugs are doing in humans.

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  15. Brain-washed? Drug-crazed? Street heroin?
    What an i---t

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  16. I hope that the holistic approach is helping Anon 4:54, but I completely disagree with your attitude to DMTs. Its a matter of personal choice as to the risks you are willing to take for being relapse free and slowing progression- that is if you can get the funding and your neurologist will prescribe the ones you want/need. DMTs are not like heroin- even the strong immunosuppressives are used in much lower doses than used to treat cancer.

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  17. What rubbish!! When are they going to try looking for the cause? That would be the logical beginning if they REALLY wanted do something for MSers. But no, these mental midgets start in the middle and work on what they know won't work. The next move will be to create some chemical cocktail, get a bunch of money hungry neuros to push it and make money from our misery. This scenario is old and boring, has been around for decades and has done nothing. Logic and MS - they fail at both.

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  18. Re: "Its a matter of personal choice as to the risks you are willing to take for being relapse free and slowing progression."

    What does one have to do with the other? Are you suggesting that relapses lead to progression? Why do some MSers have no relapses from the start and still have progression? Why do some MSers have their relapses under control and then still develop progression? Please explain.

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  19. Gosh, I'll wear the badge of "mental midget" with pride. My Mam will be delighted!
    Anybody with anything positive to say, you're more than welcome.
    Have a good weekend all!

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  20. What does one have to do with the other? Are you suggesting that relapses lead to progression? Why do some MSers have no relapses from the start and still have progression? Why do some MSers have their relapses under control and then still develop progression? Please explain.

    The question is do the processes that drive relapses condition the CNS for the development of progression

    or is progression completely independent of the processes of that drive immunity.

    They are different processes read the blog

    http://multiple-sclerosis-research.blogspot.co.uk/2011/09/education-treating-progressive-ms.html

    http://multiple-sclerosis-research.blogspot.co.uk/2011/09/education-targeting-progressive-ms-part_08.html

    or research matters

    http://multiple-sclerosis-research.blogspot.co.uk/2012/10/progression-matters.html

    In MS the answer is not definative some people get progression without seeming relapses but you can have a mouse with one attack and progression starts, likewise it takes a number of relapses in another mouse. I do not thing the processes are different.

    In animals you can say that one conditions the other and at some point the progression is set in motion that is not dependent on relapses.

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  21. Re: "In animals you can say that one conditions the other and at some point the progression is set in motion that is not dependent on relapses."

    Exactly. The notion that one relapse can set off the chain of events that lead to progression does not conclude that to stop mulyiple relapses will definitely suspend progression. That's why to me the DMT squad is at times as nasty and rude as the CCSVI mafia. If you present an argument that questions the effectiveness of DMTs they turn on you.

    Until there is a real cure for MS I will always be suspecious of both the CCSVI and DMT brigades.

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  22. Oh gosh guys - it was so nice here then I went offline for a bit of cooking, emailing and relaxing - come back and it's a war zone :-(( Just celebrate the good news of today!

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  23. Exactly. The notion that one relapse can set off the chain of events

    But to clarify that it is the level of damage that determines this tripping point so strain accumulate a lot of nerve damage from one attack in the others less nerve damage.

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